Shared decision making and patient decision aid for patients with Craniosynostosis

Our team has a family-centered model to decrease cost and treatment burden while customizing care to meet families’ unique needs. As part of this model, we developed a decision aid to support decisions about treatment for craniosynostosis.

This project led by Kamlesh Patel, MD as part of family-centered care in pediatric facial plastic surgery.

Patel, K.B., Pfeifauf, K.D., Snyder-Warwick, A. (2021) Family-Centered Pediatric Plastic Surgery Care. Mo Med. 118(2):124-129.

Said, A.M., Zubovic, E., Pfeifauf, K.D., Skolnick, G.B., Agboada, J., Acayo-Laker, P., Naidoo, S., Politi M.C., Smyth, M., Patel, K.B. (2022) Shared Decision-Making: Process for Design and Implementation of a Decision Aid for Patients With Craniosynostosis. Cleft Palate Craniofac J. doi:10.1177/10556656221128413